Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Arolwg Ar-lein DAB160

Online Survey DAB160

Ymateb gan Cyfrannog ar-lein 160

Evidence from Online Participant 160

Please refer to questions in the Online Survey.

Question

Answer

01

No

02

Yes

03

Yes

04

Yes

09

Yes

10

Yes

12

I am very high functioning in some areas, and low functioning in others. I don't want people to assume that because I can study at university level, speak two languages, travel abroad independently, and am very sociable, that I don't have real support needs in other areas. I've had 30 years to perfect appearing normal to casual observers, it can be very difficult to tear all that down to fit in the boxes people like autistic people to fit into.

Also, I struggle to use the phone, and this makes it difficult to get services as many providers will only use the phone to contact me, especially NHS.

I have a friend who is an alcoholic because she could not cope the with stress of being autistic. I wouldn't want her to be excluded because of her coping strategy.

13

Yes

14

age, gender, age at diagnosis and la area could all be useful for planning services

I would be wary about having a list that might be misused.

15

It should be written on the Bill.

16

Yes

17

It should happen all the time.

19

i want ongoing support for adults! Proper autism support is not about working towards independence, but about finding a level of support that helps someone to function until they die. People are not cured of autism, nor does it get better over time.